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The Data Protection Act 1998 (DPA) gives you the right to see all
personal data held about you by any organisation. This includes
(with some exceptions) information contained in all manual and electronic
health and social care records, whenever it was recorded. The DPA
places the onus on Data Controllers (Health and Social Services)
to make it as easy as possible for service users to access their
records.
There are only two situations in which a request to see your mental
health records can be refused:
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If in disclosing the personal data, information about another
person or "third party" is revealed without their
giving permission for you to see it.
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Where permitting access to the data would be likely to cause
serious harm to the physical or mental health of the person
to whom it refers or to any other person.
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These are the only circumstances in which information can be withheld.
In all others, the law gives you access to your records. You also
have the right to ask for copies of part or all of your records,
although you may be charged for this service.
What Records are kept ?
Any contact with mental health services potentially will generate
a record of that contact, which may then be kept for many years.
These records may exist as paper files or increasingly as electronic
data. Herefordshire Social Services routinely keep all mental health
records for five years after last contact and the Primary Care Trust
(Health Service) may keep them for up to 26 years.
All mental health professionals are required to keep records of
their contact with service users and traditionally have done so
in separate files. While the trend is increasingly for everone to
record in a joint file, your past mental health records may be kept
in several different places depending on which part of the service
you have seen. So if you want to see everythng written about you,
you will probably need to look in several different places:
Mental health information may exist in files kept by :
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CMHT (community nursing and occupational therapy)
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Medical (in-patient and out-patient)
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Social work
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Hospital Nursing (ward nursing staff)
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Day Hopital
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Psychology
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GP
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Additionally personal details and records of your contacts with
health and social care staff are kept on several different computer
systems. Some of this data is anonymised and used by managers for
monitoring and planning services. You have the same right to see
electronic information personal to you as that contained within
traditional paper records.
How do I get to see them ?
A request for access to your mental health records should be made
in writing to either:
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your Care Coordinator
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the Mental Health Services Manager 01432 355444
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Mental Health Team Manager - 01432 266384 (for Social Work
records)
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On receipt of your request the Data Controller (Primary Care Trust
or Social Services) has 40 days in which to arrange access or give
a reason why access is denied.
During that time the data controller is responsible for checking
through your notes for any information about "third parties"
and if possible gaining permission for you to see it . Your notes
will also be checked for any information that might be considered
injurious your mental or physical health and that information may
be withheld.
When this is done you will be invited in to view your notes. You
should be provided somewhere quiet and private to read them. Your
Care coordinator or someone nominated by him/her should be available
to explain any thing you do not understand.
You are not allowed to take the file away with you but can have
copies of its contents made although you may be asked to pay for
these.
What if I don't agree with what is written ?
If you don't agree with what is written about you in your notes,
you can ask that your disagreement be recorded in them and/or request
that they be corrected. Ultimately if you cannot come to an agreement
over an amendment you can apply either to the Courts or to the Data
Protection Commissioner for your notes to be corrected or the offending
material to be erased.
Data Protection Commissioner
Wycliffe House
Water Lane
Wilmslow
Cheshire
SK9 5AF
Tel. 01625 545 700
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